IMPACT
OF BURDEN OF CARERS FOR PEOPLE WITH DEMENTIA
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IMPACT
OF BURDEN OF CARERS FOR PEOPLE WITH DEMENTIA
CHAPTER
ONE
INTRODUCTION
·
Background of the study
Dementia is expected to become a
serious health and social burden of disease in the older adult population given
its naturally progressive and irreversible course. The problem is especially
severe in low-to-middle-income countries (LMICs), where dementia is the most
important independent contributor to disability in the elderly and resources to
diagnose and treat dementia are limited. By the mid-21st century, 78% of the
world’s older adult population will reside in LMICs, with expected concomitant
increases in dementia cases. The most common type of dementia, accounting for
60–80% of all cases, is that resulting from Alzheimer’s disease
LMICs are characterized by low levels
of awareness regarding dementia as a chronic degenerative brain syndrome, and
by an absence of supportive health and welfare services. Almost all patients
with dementia are cared for at home by a co-resident family member. This situation
is unlikely to change in the near future, as institutional care is neither
affordable nor culturally acceptable. It is important to realize that AD not
only affects the patient, but also the whole family and particularly the
caregiver. Providing care for people with AD is particularly demanding as the
needs for care escalate with the progression of the disease. Because caregivers
play such vital roles for people with dementia, it is critical to understand
the factors that affect their caregiver burden. George and Gwyther defined
caregiver burden as “the physical, psychological or emotional, social, and
financial problems that can be experienced by family members or friends who
care for impaired older adults.” Stull et al concluded that caregiver burden
is a unique domain of the caregiving experience.
Identifying possible predictive
factors of perceived burden among caregivers of patients could improve
integrated healthcare strategies for this type of illness. A number of
variables, including the caregiver’s sociodemographic characteristics, the
clinical characteristics of the patient’s illness, and the social support and
personal resources available to the caregiver determine the perceived burden of
caregiving . A version of the caregiver stress/appraisal model was proposed by
Yates et al.[9] and assessed by Chappell and Reid [10]. Currently there is no
consensus regarding the predictors of high levels of burden of caregivers
especially those caring for patients with mild dementia. We used an adaptive version
of the stress-appraisal model of Chappell and Reid and assumed that: (1)
primary caregiver-stressors (cognitive impairments, functional disability, and
problem behaviors) lead directly and indirectly to caregiver burden; (2) this
indirect relationship is mediated by one of the three mediator variables:
perceived social support, family function, and caregiving experience; (3) the
number of caregiving hours is treated as the primary appraisal variable
·
Statement of the problem
There may have been previous
researches in this subject. This work gives further explanations and analysis
in awareness of professions in business education among secondary schools
·
Objectives of the study
1.
To understand the complexities connected to dementia
2.
To identify the risk faced by care givers taking care of individuals
with dementia
3.
To recommend support measures for help carers of people people with
dementia to engender improved well being of people with dementia.
·
Research questions
4.
What are the complexities connected to dementia?
·
What are the risks faced by care givers taking care of individuals with
dementia?
·
What support can help carers of people with dementia improve their
wellbeing?
·
Research hypothesis
H0: There is a weak relationship
between care-givers activities and improved well being of persons suffering
from dementia
H2: There is a strong relationship
between caregivers activities and improved well-being of persons suffering from
dementia
·
Definition of terms
Care giver: is a paid or unpaid and
without formal training (in the related treatment) member of a person’s social
network who helps them with activities of daily living
Dementia: it’s a term that covers a
wide range of medical conditions, including Alzheimer’s disease; symptoms
include memory loss.
Burden: To give someone problems,
trouble, or responsibilities
Well being: The condition of an
individual or group
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